Monthly Archives: January 2014

My Life as a Guinea Pig with PD

Since I was diagnosed with PD in early 1997, I have had occasion to participate in several studies.This post just describes them. The first major one was FOR something that looked promising in animal studies at Hopkins– neuroimmunophilans. A world renowned PD doctor, Stanley Fahn at Columbia, whom I knew from NIH committees,thought this drug had promise.,.It required frequent trips TO NEW YORK FOR EVALUATION AND EKG. IT ALSO REQUIRED TWO VISiTS TO NEW HAVEN FOR IMAGING . I THINK I HAD TO BEAR ALL THESE EXPENSES.. THE PILLS HAD TO BE BIG AND NUMEROUS -ABOUT 7 HORSE PILLS PER DOSE . THE STUDY WAS DOUBLE- BLINDED. SOME PEOPLE THOUGHT THEY WERE HELPED SIGNIFICANTLY BUT THE STUDY’S SPONSOR AMGEN FOUND NO SIGNIFICANT EFFECT.
I learned at the study’s  end that i was on placebo-.Although some of my  quantitative finger tapping scores showed improvement , that was ascribed to PRACTICING.

AMGEN SOLD THE RIGHTS to this drug to a small drug company, AND THEY ASKED advocate PERRY COHEN, ONE OTHER PATIENT, and me TO ADVISE THEM. WE dID AND THEY configured  A SMALL STUDY SO  WE COULD ALL GET THE TREATMENT DRUG WITHOUT MESSING UP THEIR MAIN TRIAL. THEY TOO REPORTED NEGATIVE RESULTS..
.I ALSO DID A SMELL TEST USING SCRATCH AND SNIFF PAPERS –WHICH SHOWED MY OLFACTORY ABILITY WAS VERY OFF..

I ALSO HEARD ABOUT THE WORK OF DR SURMEIER AT NORTHWESTERN WITH CALCIUM CHANNEL BLOCKERS LIKE ISRAPAPINE AND TOOK IT FOR SEVERAL YEARS WITH A DOCTOR’S CONSENT AND BLOOD PRESSURE MONITORING. I
WOULD LIKE TO GET THAT AGAIN FOR NEUROPROTECTION..

I WAS ALSO GIVEN SEVERAL COGNITIVE TESTS [BEFORE AND AFTER SURGERY–BELIEVE THOSE WERE FINE.

ABOUT 2 YEARS AGO I SHARED MY dna with “23 and me” for their study looking for genes associated with pd. THEY REPORTED I HAD A LESS THAN NORMAL CHANCE OF GETTING PD..THAT’S A RELIEF.I AM REALLY HAPPY I WILL NOT PASS THIS DISEASE ON.
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SEVERAL PLACES HAVE ASKED ME TO DONATE MY BRAIN, BUT SINCE I AM STILL USING IT–AND HAVING SEEN MONTY PYTHON–I HAVE SO FAR DEMURRED.

I SERVED ON NIH OVERSIGHT COMMITTEE FOR CREATINE TRIALS, BUT WAS NEVER OPTIMISTIC ABOUT THAT .

2001–A STEM CELL ODYSSEY

    In 2001, I WAS  INVOLVED IN DEFENDING THE LEGALITY OF FEDERAL FUNDING OF EMBRYONIC STEM CELL RESEARCH, AND IN LOBBYING FOR THE ADMINISTRATION TO ALLOW THIS. STEPHEN HALL, A DISTINGUISHED SCIENCE WRITER, LEARNED ABOUT MY INVOLVEMENT FROM SCIENTISTS AND THEN  BY INTERVIEWING ME TWICE. I WAS INVOLVED IN LOBBYING THE ADMINISTRATION AND IN ORGANIZING A LITIGATION STRATEGY TO ENSURE THAT THE ADMINISTRATION DID NOT SEEK TO AVOID RESPONSIBILITY BY ARGUING  IN COURT THEY HAD NO CHOICE BUT TO FOLLOW THE WICKER AMENDMENT., WHICH BARRED FEDERAL FUNDING OF RESEARCH IN WHICH EMBRYOS ARE DESTROYED. HALL’S BOOK–ENTITLED MERCHANTS OF IMMORTALITY-BEGINS HIS DISCUSSION WITH THE LAWSUIT.MY FIRST INTRODUCTION TO STEM CELLS CAME EARLIER FROM MY SERVICE ON THE NIH COMMITTEE FOR PD AND THEN IN PREPARING A SPEECH I GAVE ON THE TOPIC.

  1. STEM CELLS 

My  first immersion in the science and morality and politics of embryonic stem cell research came in early 2001, as I prepared my presentation for the annual meeting of the American Association for the Advancement of Science to be held in San Francisco. I had been asked to speak by the NIH scientist who had proposed the panel, Ron McKay. My presentation has been called by science writer Stephen Hall “ one of the most optimistic and in some respects, politically naïve speeches” to be heard during this meeting. Hall, Merchants of Immortality, p. 248. I argued that the morality of using for research purposes excess embryos derived from in vitro fertilization procedures (embryoS that would otherwise be thrown away ) was so compelling that I thought the recently elected George W. Bush would eventually see it that way. My “naivety” was a conscious, studied, one. If you want to persuade someone of an argument, you do not start by writing him off even if he has gone on the record against your position.

Certainly it took Bush longer—and he reached more of a compromise position, than either advocates or opponents of stem cell research would have supposed.The general expectation was that Bush might well act quickly, comparably to the way Clinton had changed Bush 41’s position on fetal tissue transplants. Clinton had reversed the ban by executive order on his first day in office. Bush, on the other hand , had HHS Secretary Tommy Thompson and others review the topic for months. When Bush announced his position it was in the first prime time address to the Nation of his presidency. Time Magazine called it the “toughest call of his young Presidency.” My role in the stem cell battle in 2001 was generally behind the scenes. But a year later or so, a writer, Stephen Hall, picked up my involvement from some scientists he had interviewed and wrote about it at length in his book Merchants of Immortality.
As Mr Hall recounts, I played a role in three aspects of the stem cell debate in 2001, culminating in the President’s decision in August. It was the biggest domestic issue of Bush 43’s first year as President.
First, I decided the pro –stem cell side could not afford to sit on the sidelines as opponents argued that funding stem cell research would run afoul of the Wicker amendment to the HHS Appropriation. I organized the scientific and legal team to assure this legal objection to research would be vigorously opposed.
Second , I used my contacts in business, government and elsewhere to support the national grass roots campaign to support stem cell research led by the Coalition for the Advancement of Medical Research(“CAMR”).
Finally, I wrote the first letter to the Administration outlining the problems with the Administration’s “compromise decision”.
THE STEM CELL LAWSUIT
Mr Hall first writes about the lawsuit: “On March 8 , the day the Nightlight lawsuit was filed, Jeff Martin was on his way from New York to Philadelphia, accompanying his eldest daughter on a round of music auditions at music conservatories she was considering for graduate school. It had already been a discouraging day—the New York Times had a front-page story that morning on some disappointing results of a fetal-cell transplant technique to treat Parkinson’s disease. But when Martin received word of the Snowflake lawsuit by e-mail, he became especially concerned. It wasn’the plaintiffs that concerned Martin, or even the arguments made in the lawsuit. It was the attorneys.”
“They came from the Washington law firm of Gibson, Dunn & Crutcher—‘ a law firm,’ Martin noted with characteristic understatement , ‘which was very well connected to the Bush administration.’ Thomas G. Hungar, the lead attorney for the Nightlight group , was a highly regarded appellate attorney who had just played a major role helping his mentor, Theodore Olsen, argue the Bush campaign’s side of the historic 2000 Florida election dispute before the Supreme Court. That connected.” The identity of the law firm heightened my concern that the lawsuit might be a vehicle for the administration to cave, to declare the NIH stem cell policy from the Clinton era illegal and spare the President involvement in a no-win political controversy.
This lawsuit dovetailed with comments about legal problems Secretary Thompson was referring to in calls with business leaders supportive of stem cell research. My contacts had reported that Thompson was inclined to support this legal objection.
So I decided we had to participate in the lawsuit.
Hall writes: “Martin, a soft-spoken but to his adversaries , no doubt irritatingly persistent man, decided to sue his friend Tommy Thompson ,and his colleagues over at NIH .”The purpose of the lawsuit,’ Martin told Hall, “was to take that legal issue away and make the president decide on policy grounds.”Merchants of Immortality, p. 254. Our lawsuit accomplished that.
Indeed, before filing the papers I took a rather unusual step. I was very concerned that the Government might act quickly once the Nightlight suit was filed ; both people talking to HHS and people talking to White House sources learned that action was planned for April and that action could be taking a “more correct or conservative” legal position than had Bill Clinton’s general counsel at HHS, Harriet Rabb, who had opined that stem cell research was eligible for federal funding after the stem cell lines had been derived through other funding.
I called up the Justice department lawyer nominally leading the representation of the Government in the Nightlight suit. I said: “ If I have assurance that my papers will be given to and reviewed by people at the decisionmaking level, then I will share them now and not seek an immediate temporary restraining order.” A few days later I received a call from a lawyer in the Deputy Attorney General’s office who was involved in the President’s review and who had access to decisionmaking levels. I knew this because this lawyer happened to be Vice President Cheney’s son –in –law. He agreed to my request.
I also told Thompson the same thing. He called me back from a plane and instructed me to be sure a copy of my legal papers got directly to him personally.
What might have happened but for this action I will never know. But suddenly there was less discussion of legal problems with the Clinton policy, and the Nightlight suit got put on hold by the parties. Moreover, advocacy groups , including PAN, upon hearing that an adverse announcement was imminent in April, flooded the White House switchboard. Whatever might have been, the President ended up taking till August to reach his decision.
LOBBYING THE BUSH ADMINISTRATION
Second, as far as my role in the lobbying on stem cells, Mr Hall is a bit generous when he writes:
“In a quintessentially Washington kind of way, Jeff Martin-the well –connected, self-effacing, low-key broker of information, legal advice, lobbying expertise and patient advocacy—had a finger in several pies.’ Merchants of Immortality p 262. I stayed in touch with many people on the pro –research side, maintained communication with Secretary Thompson, and tried to provide some intelligence and coordination for people going into important meetings.
EARLY RESPONSE TO BUSH COMPROMISE DECISION
I met and talked by phone with Secretary Thompson from time to time. I had known him for a few years and worked with Thompson when he was Governor of Wisconsin on the redevelopment and retention of Saks Inc.’s Northern Dept Store Group in Wisconsin .
In the midst of the stem cell review,I invited him to a dinner with the Saks Board in early June of 2001. He came and told me privately the Administration was looking at a potential compromise on stem cells. I said limiting research to excess embryoes would work. Thompson said they may limit funding to work with cell lines already derived because the embryoes had already been destroyed.
Mr Hall picks up the story nicely from here:” “ This first hint of a possible compromise wouldn’t appear in the press for another three weeks, but Martin immediately e-mailed his scientist-clients, reporting the possible policy shift and soliciting reaction. He got an earful. At the time , there were only half a dozen or so human embryonic stem cell lines published in the scientific literature, and the biologists were nearly unanimous: that wouldn’t be enough. Even at this early juncture, the number of viable cell lines was seen as crucial. Within a day he was flooded with scientific objections, and on June 15 he sent a hastily composed two-page letter to Thompson warning him—and the administration –of serious shortcomings in any policy that limited the research to existing cell lines….. Almost every objection enumerated in Martin’s letter—the inadequate number of cell lines, their unfitness for clinical use, and severe restraints on their distribution because of intellectual property issues —-anticipated by two months all the criticisms raised about the plan announced by the president on August 9. When asked if he recalled the letter, Thompson replied , “Sure do. Jeff is a friend and an adviser to me , so I take whatever he writes seriously.” Merchants of Immortality, p363.
t
. When President Bush announced his decision, it struck me as worse than hoped for but better than expected.  i was tipped off by Thompson of the upcoming announcement and a camera crew from the BBC came to my home to get my reaction.

MOREOVER, President Bush’s AUGUST 2001 decision reflected a freedom of action that would have been precluded had the Snow flakes LITIGANTS won the case. THERE IS NO STATUTORY LANGUAGE IN THE  WICKER AMENDMENT tHAT DRAWS A LINE LIKE THE PRESIDENT DID. .EITHER THE ES  RESEARCH CAN BE SEPARATED FROM THE PRECEDING RESEARCH TO DEVELOP A GROWING CELL LINE , OR IT IS ALL ONE PROJECT OF RESEARCH. ALLOWING STEM CELLS ALREADY DERIVED BEFORE THE PRESIDENT’S SPEECH TO BE ELIGIBLE  FOR FUNDING, WHILE  NEWER LINES ARE INELIGIBLE.,IS SIMPLY MAKING UP THE RULE OF DECISION, LIKE A LEGISLATOR WOULD.While the presidential review was underway, we agreed with the government and the snowflake parents to put our case on hold. WHY DID WE DO THIS? BECAUSE I THOUGHT THERE WAS A CHANCE THAT BUSH WOULD REACH A COMPROMISE DECISION THAT WOULD UNDERCUT THE LEGAL ARGUMENT THAT THE SNOWFLAKES CROWD WAS MAKING. .AND THAT IS PRECISELY  WHAT HAPPENED.

FROM A LEGAL STANDPOINT, THE GOVERNMENT WOULD HAVE LIKED TO ARGUE THE CHEVRON DOCTRINE, WHICH DEFERS TO REASONABLE INTERPRETATIONS  BY THE EXECUTIVE BRANCH OF THEIR GOVERNING LAWS. HAD BUSH BANNED ALL FEDERAL FUNDING FOR RESEARCH INVOLVING ES CELLS,. THEY COULD PUT FORTH A STRAIGHT AND BROAD DEFINITION OF “RESEARCH ” UNDER WICKER AND THEN ARGUE FOR CHEVRON DEFERENCE
WHEN OBAMA TOOK OFFICE HE DID NOT GO THROUGH THE ELABORATE PREP BUSH HAD. HE SIMPLY REMOVED THE RESTRICTIONS HE COULD. THE DC CIRCUIT UPHELD THE INTERPETATION UNDER CHEVRON.
Throughout this experience I found the scientists and PATIENTS I REPRESENTED TO BE INSPIRING., PARTICULARLY Christopher Reeves -WHO READ EVERY WORD WE WROTE ON HIS BEHALF.
Eventually the Obama administration came to power, lifted the retrictions, and scientists doing adult stem cell research WERE UNSUCCESSFUL IN arguing, before the DC Circuit,that the Wicker amendment precluded the relaxation. In early 2013 the Supreme Court denied certiorari.This odyssey, involving the frontier of science facing moral and legal objections, was concluded.

. Coming around the corner the nexT month was September 11, 2001. That morning the country watched as hijacked jets were flown into the Twin Towers and the Pentagon.It was the worst ATTACK ON THE SINCE PEARL HARBOR. THE President would be preoccupied with the War on Terror, just as his father had been preoccupied with the first Gulf war.

From now on , domestic priorities like the stem cell issue or NIH funding or reorganizing health care delivery or promoting innovation would take a back seat to terrorism.
THis DIVERSION OF ATTENTION SHOULD BE REGARDED AS ANOTHER COST OF TERRORISM,
I watched with interest the President’s response to 9/11 and watched Colin Powell lay out the case for going into Iraq. My daughter’s boyfriend, now my son-in-law, was fighting in Afghanistan, and so we worried about him.
When Congress passed its resolution in support of going after Iraq, I watched with dismay as it hurt the position in Congress of Congressman Jimmie Duncan—one of the few Republicans to vote against the resolution. I had convinced him to support stem cell research, at some political cost .
When I visited Duncan in his office, he explained to me that he wasn’t doubting that Iraq had weapons of mass destruction (though that is very much in doubt today). He thought our armed forces should only be deployed to defend our country’s vital interests , not to be the world’s policeman. We were in no danger from Iraq. He said that he viewed his vote as reflecting a traditional conservative position. I must admit his answer seemed pretty persuasive , even before we learned that Nation-building in Iraq would be so costly to America in terms of lives, dollars and new enemies created.
Out intervention in Afghanistan—on the other hand—seemed much more justified and successful. I recall meeting the Afghan Ambassador to the United States in the owner’s box at a Redskins game, and hear him tell how girls there were now permitted to go to school.
In any event, we had to support the troops whatever the merits of past decisions.
One year later we faced a more immediate terror . Someone was shooting random people in our neighborhood—a woman sitting in front of our post office; a woman pumping gas; a man mowing the lawn; a woman in front of the craft supply store. All were places we knew so well, within two miles of our home.
We still went out when necessary but we always looked around to see what was in line of sight—or whose line of sight we were in. Heeding a false clue released by the police, we looked for , found and were wary around the now ubiquitous white panel trucks.
I pumped gas for all the family cars in a crouch by the pump, so that I was hard to shoot. We did not go out on a whim. For a month or so ,life was interrupted by someone who hated my neighbors and my family and me enough to shoot us dead—for no reason. The world had indeed changed.

i

The Secret FORMULA for GREAT KIDS

The Secret Formula for Rearing Bright and Kind Kids. i HAVE IT. iT IS NOT TIGER MOMS OR IPADS FOR TODDLERS. IT IS NOT MONEY.

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There is a great deal of public debate in this country about the importance of early childhood education. I believe the biggest benefit we can give our children is a stay at home mom or dad devoted primarily to the care and education of that child for the first 4 or 5 years. In this economy ,it may be hard to get by on a single salary.But if you can swing it, it will pay huge development dividends.

I WILL GO FURTHER. THE QUALITIES WHICH ONLY HUMANS POSSESS AND THUS DIFFERENTIATE   HUMANS ARE POSSIBLE ONLY WITH THE FOUNDATION OF THE FAMILY 1. THE TEACHING AND INSTILLING  OF ETHICS AND MORALITY; 2. HIGH COGNITIVE SKILLS 3 ABSTRACT THINKING;AND  4 KNOWLEDGE PRESERVATION AND TRANSMISSION THROUGH STRONG LANGUAGE  SKILLS.

I see the benefit  in our daughters and granddaughters.. DIANE STAYED HOME ONCE WE HAD KIDS AND SARAH AND LAURA ARE DOING THE SAME.

i AM PROUD OF DIANE FOR MAKING THAT DECISION IN  A TIME AND PLACE WHERE PEOPLE PUFFED THEMSELVES OUT OVER THEIR BIG JOBS, EVEN MORE THAN THEY DO TODAY.

MY FIRST BORN–SARAH- has a master’s in voice from the Peabody Conservatory. For four years she was a regular at the Baltimore Opera. She is devoted to her family .She and her husband Jeremy have a terrific 4 year old -Charlotte Joy,whom I see almost every day. Charlotte is LEARNING TO READ FROM HER MOTHER AND JUST LOVES IT.

.Laura is a talented artist and she has been married over two years To Christian Hoff –He is a principal at Booz Allen ‘ and they have a perfect eight month old named Sophia Belle . LAURA TOO IS STAYING HOME WITH SOPHIA.AND SOPHIA is starting to walk.How precocious is that? I doubt that any teacher or nanny  could do as well as a smart and motivated paren
FINALLY, I KNOW THAT MY KIDS And  Grand        KIDS WILL BE “THERE FOR ME”AS MY PD GETS WORSE. AND BY   THERE  I DO NOT MEAN THE PLACE FROM WHICH THEY SET MY ICE FLOE AFLOAT. (  Fade out music:   The Cat’s in the cradle)

photo (20)By Jeffrey C. Martin

Toddling along–the middle brother JEFF

My earliest memories are of falling down. While running around a neighbor’s house with older kids my 3 year old forehead  collided  with their their cement  front steps . In my own house I fell down the basement stairs. And while examining a map from atop a neighbor kid’s desk I again lost my footing. I infer from this that I was on the loose  at an early age, that the idea of childproofing  a toddler’s  environment  had not yet come into its own in 1956-58, and that I was more fearless than graceful.

In light of the worries parents face today and have faced since the mid-60s or so, it seems that my peers  and I were one of the last generations  to know wide freedom of movement without adult overseers. We roamed near and far on bikes, visited unknown houses over a mile away for “Trick or Treat”, and spent far more time playing outside than doing any homework or supervised activity.

We were free. We were happy. So long as we survived, we thrived. We picked up immunities, as well as germs and  stitches , from this unfettered rush into life. It is , to my 60 year old mind, its how life as a child should be–except if you are one of my grandkids -who require constant  protection.

my mom’s family

my mother is 87 years old . she lives in her own house in memphis. Last year we encouraged her to move to a senior living center. She did so but after 2 months  concluded she was not ready to live with all those old people . NOR she did not like the  group activities planned for the residents, so she moved back to her townhouse, She is active at her church.AND LUNCHES WITH FRIENDSAFTER CHURCH.  she usually visits me and my fCREW IN D VA

SHESgrew up poor on a small

farm( only 2 1/2 acresnear Rushville Ohio. They had no indoor plumbing; heated the housIntroducing Longreads’ Best of WordPress
http://en.blog.wordpress.com/2014/06/05/introducing-longreads-best-of-wordpress/e with a coal stove; took sponge baths; her mother set an example of self sacrifice always saying she preferred the normally undesirable parts of the chicken she cooked –eg neck grandma  lived alone on  that farm for 20 years; and loved us dearly . Occasionally she’d get  a chore out of me:“Would you weed the walk to the well , Jeff?” She suffered greatly when the youngest of her three children—Mary—died at age 35 of breast cancer, the disease which later took her life. She kept her hair pinned up but at night always brushed it and I always thought it very long and beautiful.

My grandfather Albert Hoisington worked hard on their 2 and ½ acre farm, growing corn, strawberries, rhubarb and keeping a few animals .I remember his chewing tobacco and how rich it smelled. I remember picking strawberries with him; then sitting out with him by the road to sell them to passing cars. I remember how he cut the corn off the cob due to his lack of adequate teeth. And I remember how very sad I was  –and my whole family, particularly Mom, was —when he died of a heart attack in 1961 at age 66.

I believe Grandpa Hoisington was a World War I veteran. (He never talked about it but there was a plaque on the wall and  e railroad. He and my Grandma had met when both lived in West Virginia. They were older than the typical couple when they married —approaching 30.

Both sides of my mother’s family descended from the English and immigrated to America in the 1600s. When my mom was little she had two grandmothers living at the house—little Grandma ( her dad’s mom) who smoked a corn cob pipe; and big Grandma (her mom’s mom).

When I stayed with my maternal grandparents  in the winter I loved putting my cold feet on the coal stove while watching television. It took a few minutes until your socks heated up so much you had to take your feet  off the stove. A few minutes later I would repeat this sequence. it made for a relaxing time until  grandma scooted me off to bed upstairs. I did not enjoy walking to the outhouse at night (which was referred to as “visiting Mrs. Jones”) or peeing in a chamberpot. Their house had very narrow stairs leading to two upstairs bedrooms—the room I stayed in had a flowered wallpaper and I often fell asleep trying to count or calculate the flowers on the walls and ceiling of the irregularly shaped room.

It was          standard practice in our family that family vacations usually amounted to staying with relatives. usually we were shipped off one at a time–sometimes two of us would go together You learn a great deal about a cousin or grand parent or aunt if you spend the night at their house .It is akin to viewing  a species in its natural habitat instead of a zoo cage. You soon learned which relatives you wanted to stay with and which ones you would prefer to visit only  briefly.For example,overnight with my paternal grandma, Orpha, was a little scary because she had a black long-haired Chihuahua who would try to nip your hands .And grandma herself could be formidable-inquiring about grades or  seeking information on other achievements. She was a red head–who by the end of her  life had had 3 husbands, raised four kids(2 sets of twins), held a good job with the federal government for 40 years , and served as one of the first  woman elders in her Presbyterian church. She taught me to love scrabble and  to play it competitively.

Aunt Mary–my mom’s sister who was 10 years younger than my mom was my favorite relative. she was very funny , and it was at her house that I read popular magazines and novels such as jACQUELINE SUZANNE’s “the valley of the dolls”. I  loved how she would poke fun at dad’s driving Dad had a disturbing practice of letting his vision wander over the panoramic vista, Turning his head around 150 degrees instead of FOCUSING on the road ahead. MARY  always said she felt safer riding with her husband Wayne going 100 miles  an hour than Bob at 30mph

She taught me about popular music of the day-.-Engelbert Humperdinck was her favorite   singer. Mary lived in a tiny pink rambler in Lancaster Ohio.Her neighbor  directly across the street was a man named Bob Schaefer who had once asked my mom to marry him (long before she met my dad). Mom had turned Bob schaefer down but it was a sensitive issue we boys could exploit if necessary.  I WOULD CALL FOR A VOTE ON MOM’S DECISION LL ;s dad,Grandpa martin was very proud of his grandsons and attended every graduation.  He was also a clothes horse and loved to look good in his suits.

When Grandpa was in his 70’s, my wife undertook to do a family tree following the birth of our first child. No one knew anything about Grandpa’s past. At that time he opened up about his history to my dad.  He wrote a letter in which he revealed for the first time that he was not born in the United States.  He had been born around 1903 in a part of what was then Austria-Hungary and now was part of Rumania. He was  borne in Ploesti but moved early on to Transylvania.  His mother died when he was young, and apparently his father came to America to find work. Grandpa said his family in the old country were  serfs on a baron’s estate—which he described as being  like sharecroppers here. His stepmother was quite cruel, and so at a very early age, he went to America himself accompanied by a paid adult chaperone.  He arrived in New York at age eight . Though so young, grandpa did not go to school, he began to work.  His first job was selling apples and newspapers on the trhttps://wordpress.com/post/grumplesixty.wordpress.com/318ain.  He learned English and never spoke with an accent.  He was not proud of his history, and had kept it from his wives and children 90% of his life. He had no formal education but was always up on current events and was a very good conversationalist. As a young man,he had nearly died after falling off  a tall ladder he was using to paint a building, He was disabled for several years.          Then , during his last working years he managed a bowling alley in Columbus, a wonderful job for a grandpa. He liked to smoke cigars and suffered from a painful neuralgia in his face until he had a nerve surgically severed.   Grandpa is the reason I find the current anti-immigration fever in this country so disturbing.

 

Grandma Orpha had two husbands  besides Grandpa.  One lasted only a year or two and escapes memory , and the third, Charles Higgins, was a younger man who worked on the railroad and was quite eccentric.  When we visited, he didn’t come out of the back room, but we would go back to play cards with him.  I believe my grandmother never divorced him, but they did separate.  The reason for the absence of divorce was to retain his railroad pension if she outlived him.  We had a big party to celebrate her 90th birthday, and she passed away a few years later , having outlived 3 of her 4 kids but not Mr. Higgins. I flew to Columbus to see her during her last illness. She was quite frail but confident of her destination and not afraid of death .

She loved her grandchildren but could be quite demanding.  When my brother Brad and I  were about 4 and 2, respectively, she thought we were being wild, so she told us that if we didn’t behave, she would leave us.  She walked out the door and drove around the block.  When she returned, Brad was on the telephone . He had asked  the operator to put him through to our other grandmother—he knew her rural exchange number—who lived about 30 miles away.  Brad was explaining to Grandma Hoisington how we had been left by Grandma Martin as the latter walked back in.  Mortified, Grandma Martin took the phone to reassure my other grandmother.  years later, when it became time to pick a first babysitter for sarah, we picked her.

Grandma  Martin loved to play games.When I was about 8, we were having a Scrabble game. I asked her if  “crux” was a good word and then played it on the triple word score.  This was my first victory against her, and we played close games for the next 40 years.

 The Cambridge Idyll

From age three to age 11 ( around 1956-64) I   lived in Cambridge Ohio, population about 14,000. My family  seldom ate out—if we begged to go to Dairy Queen while driving home after a visit to family friends my dad would usually say “ we got ice cream at home.” When we did dine out my favorite place was the  “Coney Island” restaurant and my favorite order there was a “hot dog—ketchup only .”

My family’s social life was largely visiting other families where the dad worked with my dad at the RCA television manufacturing plant . We also frequently visited family –like my grandparents–who lived about 60 miles away.

My brother Brad , two years and three grades ahead of me, was a better baseball player than I. We often played “Willie Mays” by throwing fly balls into the poplar trees and trying to make the catch off each other’s throws. My younger Brother Brian was three years younger and not as much of a competitor of mine in sports at this time.

We must have had many ear or throat infections because Brad and I were roommates  in the hospital  and had our tonsils removed more or less simultaneously. I recall getting a baseball mitt for being a good patient—it was a model signed by Orlando Cepeda. A friend of mine , upon seeing my glove, claimed to be related to Cepeda. I learned much later this was an implausible lie. It never occurred to me to ask followup questions regarding how this kid with the Germanic family name ( Mark Neuen swander) was related to the Puerto Rican Cepeda.

Though I played Little League, I must have been bad. I often played right field—the loser position in Little League. One time I missed a ball because I was combing my hair.  At least I had the sense to be embarrassed by the combing incident. My vanity knew few bounds. My Aunt Mary once took me to the circus and for weeks thereafter I imitated the trapeze artist by wearing tight white pants and no shirt. Sounds a bit gay, doesn’t it? It was not . That was a simpler time — when  a boy’s vanity and flamboyance did not imply anything else.. today i expect that boy would be put in therapy to discover his true self.

My dad would compete with us at times—from wrestling to high jump to broad jump to dashes to basketball to arm wrestling. Once, after watching the Olympics on television my dad raced us three boys down the road. An alarmed neighbor lady saw us and thought our house must be on fire. We had to stop the race to calm her. Sometimes my roughhousing with my dad would get a bit out of hand..   0ne time we were wrestling and be pinned by head to the floor by pushing his knee and full weight (about 220 ) on to my temple. That hurt and scared me .. Dad had a temper and a competitive spirit  WHENEVER I FELT LIKE I MIGHT BEAT HIM IN ARM WRESTLING, HE WOULD SAY-“GET A REPUTATION FIRST…..emts , my brothers, nor I would “die before I wake” and that if we did , our souls would be taken by God. I believed in the power of invocations—that the mere saying of the words assured our safety through the night. I always made sure I said everyone’s name before I went to sleep.

When I was about 7 , something upset me enough to cause me to “run away” from home. I walked down my street to a house with a barn—I went in the BARN to rest a while. I fell asleep. After several hours, I woke and   realized no one knew I had run away. I had not been missed. It  was growing dark. So I walked home, disappointed.

America in the late 50s early 60s was a different place than it is now.  I could run away and not be noticed! Going home and telling your parents you had run away diminishes  some of the emotional impact on them that was the very point of the whole thing. This was well before milk cartoons scared kids thinking of flight.

I delivered a paper route of out of town papers (such as the Cleveland Plain Dealer) that only a few people in our neighborhood took. No older kid wanted my unprofitable route—you might ride your bike 3 or 4 miles for 10 papers. Brad had a more normal paper route.

I enjoyed performing. I had a Jerry Mahoney dummy I had received for Christmas when I was in first grade, but I never really learned to throw my voice, enunciate with my lips closed  or tell jokes. That did not deter me. Most of my material came from Boys’ Life magazine.

Once, while wearing my cub scout uniform, I did recite a poem at a downtown baseball game . The poem was about the flag and it was carried on the local radio. All I recall about the poem  is “the white is for purity.”

My grade school principal –Mr. Jefferson –moonlighted as a security guard at local ball games. I recall he once came up to us at  a ballgame to tell us I had scored quite high on an IQ test. That was news to us all but it did not change anything.

I must have been interested in politics early. I recall the election of Kennedy , though my parents and Ohio had gone for Nixon. I had read Kennedy’s “Profiles in Courage”. After the assassination I received an album of Kennedy’s speeches, which I often played. I loved his speeches. I also recall the crowds at school when they distributed the oral polio vaccine to us kids.

The broader issues facing America in the early 60s , such as  racism and the space race , were present in my life.  I knew it was crazy and wrong when a neighbor called my mom to complain that a black classmate of mine  had come over to my house after school. The neighbor had seen us playing basketball.  I  ALSO remember attending a parade   in  1962to honor the hero of the US Space program, John Glenn, who had been  born in Cambridge   and had grown up in nearby New Concord.

My dad was the first person on either side of my family to go beyond high school. In my neighborhood I was proud of my family but I did not want my parents visiting my school. My parents came to school once when I was in second grade . I refused to sit with them at lunch. I guess I thought I was too cool to have parents.

I was a picky eater. My dad sometimes would make me sit at the table for hours until I cleaned my plate but my Mom would eventually release me. Over time she started to make me a special separate dinner, often a hot dog.

My family had some peculiar habits. Instead of paper napkins we wiped off with a wash cloth. Once my brother Brad had a friend over for supper. He had finished eating by the time my dad got around to saying : “Boys, clean your plates.” He picked up the wash cloth and began cleaning his plate.  I couldn’t stop myself from laughing at that.

I was in the Fifth grade when this world was suddenly taken from me. We had to move. I hated the idea.

The RCA television factory where my father worked was being shut down. I now know that all domestic manufacture of television sets was gradually being eliminated to reduce labor costs. It was one of the early manifestations of economic globalization. After a period of uncertainty my parents announced we were moving to Rochester, New York. My father had secured a job at General Dynamics.

ROCHESTER, NEW YORK

As we will see my fear of moving to upstate New York was more than justified.

IT was just one year, but it seemed much longer. In 1966-67 we lived in Rochester, New York, where I attended sixth grade. Somehow the kids there seemed older and less innocent than I had known in Cambridge. There was a ninth grade girl who wanted to make out with me;that was a new experience. AND there was a high school kid who took me on a ride on his motorcycle into the woods and then showed too much interest in my body. I RAN HOME.

Moreover it was during this period that I was introduced to my first experience of premature death in my family. One February evening I came into the house and saw something I had never seen before: my Dad was on the phone weeping. I soon learned that his younger brother Harold had just died under tragic circumstances. Harold had been depressed and so had checked himself into a hospital. There they administered electroshock therapy. In the aftermath they left him alone and he aspirated his own vomit.HAROLD was 35 years old ,an Air Force veteran, AND engaged to be married.
On the 600 mile drive home from the funeral, we encountered the big blizzard of 1967. The snow was piling up and the visibility was 0. My Dad couldn’t see, but by Gosh he could still drive. My Mom turned around to say: “Boys, prepare to die.” I think Mom meant for us to pray, but her formulation freaked us out. Somehow we got home safely.
The year in New york also was tough on Brian, who got pneumonia. WHEN Brian was well, he was my favorite target for practical jokes.Once I was taking a bath in our only bathroom, to get ready for a square dance at school. Brian wanted in but I ignored his knocks and pleas . Then , when it sounded like he was about to explode, I slid under the water, Brian rushed in, saw me and screamed. I laughed and went off to the dance.

So for most of us, we were not unhappy when dad informed us he was returning to RCA, this time in MEMPHIS.

walking in memphis
Memphis , Tennessee is one of the most evocative places in the world.

The city of Elvis, the epicenter of the Cotton business, the death place of Martin Luther King. The city of the birth of the Blues, W.C. Handy, Beale Street, Sun Records, Issac Hayes, Charlie Rich, the Peabody Hotel, great pork barbeque,  large economic disparities, racial tensions,  and Southern hospitality. Memphis was  the site of the first significant Union victory in the Civil War, in the Naval Battle of Memphis in 1862. It was also the home of Nathan Bedford Forest, a daring and able Confederate general who sought to recapture the City . The history of Memphis is the story of Tom Lee, a black man who in 1925, though he could not swim, braved the Mississippi River currents in a rowboat to save the passengers on a sinking steamer.

But when I moved there at the beginning of Junior High School Memphis was  simply a new and somewhat more congenial place to go about my business of developing  my identity. It was a time when issues of personal preference—smoking; drugs; drinking; length of hair—were not always distinct from political choices—integration and  economic opportunity for blacks; support for and opposition to the Vietnam War , reaction to the KentState killings, and so forth.

Political and personal choices often seemed to define who your friends were— whom  you  would hang with and what you  would do .

On April 4 , 1968  I experienced a “Forrest Gump” or Chauncey Gardner moment. Forrest and Chauncey were always around when historically significant events occurred. On April 4 I was in seventh grade and recall being home with only my younger brother that evening. I used to watch the television while laying on the floor and was doing so that night. I heard how Martin Luther King had just been shot and killed downtown and how rioting had begun—in Memphis and elsewhere. It was a  frightening time.

I wish I could say that I recognized the enormous historic significance of Dr. King at the time.  I did not. My parents had tended to agree with local officials that Dr. King had no business intervening in a strike by sanitation workers in Memphis. I had no different view. But as the night went on and as the family gathered back home we resolved to continue about our business despite the risk. That week notwithstanding the ongoing riots we went to a revival at our church—Lindsey Presbyterian. Lindsey was United Presbyterian—the denomination that stayed Presbyterian notwithstanding the advent of black members after the Civil War. The larger Memphis Presbyterian churches were of the USA type—which were founded I believe to reject  such integration . However, lest we appear to think too highly of ourselves, I do recall that our church had a special pew that had once been the pew of Nathan Bedford Forest, great Cavalry leader of the Confederacy who said his secret was to get  there “furstest with the mostest .” In addition to talking funny and riding fast, Forest was also the first Imperial Wizard of the Ku Klux Klan.

I had more pedestrian concerns as a seventh grader. My mother arranged babysitting jobs for me  in the neighborhood. There  was a family of four kids where the youngest kept trying to burn down the house; there was also a neighbor with an infant—which scared me much more than the arsonist. What mother would leave an infant with a clueless seventh grade boy? I could only put up with my mother getting me these baby sitting jobs for a short while. I got a part time job working at a dry cleaners out of self defense.

I worked the counter, taking in cleaning, stapling the tags to the clothes, taking in cash, making change, giving people their clean clothes. The cleaners was owned by my friend’s dad. I worked after school. It was not bad. Much better than babysitting.

From fall 1967 through 1972 I attended White Station Junior High and High School. It was quite a large public school, with a small black population and a larger Jewish one. Over 90% of the kids went on to college. I considered it my job to get along with everyone, as opposed to only certain groups or cliques. I was something of a high school politician. I recall several bar mitzvahs; hanging out with a black friend of mine, even once attending a rally at which  Angela Davis spoke.   My parents warned me that the FBI would be taking pictures of everyone at the Davis rally and urged me not to go; this would go in my FBI file, they warned . I went.( by  the way I have seen my fbi file and it says nothing of this)

In my junior year, I became President of the Key Club—the leading service organization in my high  school.  My achievements as president included building small  parks with playground equipment  in poor neighborhoods; forming a Key Club at Melrose High, a predominantly black school, and selling Christmas trees for charity. I also tutored a boy who was in grade school across town.

Unlike most of my contemporaries in this country, and some of my friends, I never smoked pot or did any drugs. I did not want to lose myself that way.

I also regularly attended the weekly dinner  meetings of the adult sponsor of Key Club—the Kiwanis. They had good salads.

My high school required all boys to take ROTC. I was a dreadful cadet. I remember marching around with an inoperable M-1 rifle.  I did not get along with the instructor, a sergeant who had cut off  the fingers of his right hand in an accident.

Late in my junior year I was nominated to be vice president of student council but the principal refused to let me run because he thought I would be moving away to Indiana, as the Memphis RCA plant had been shut down and my father transferred to Bloomington. Instead I persuaded my parents to let me stay in Memphis with family friends and attended White Station by actually paying tuition to attend  public school. I also ran the successful campaign of the guy nominated to take my place.

In my senior year, I  also received a special award — the Sandy Nininger award—at a high school assembly. This was for service to others. Sandy was the first American to receive the Medal of Honor , posthumously , in World War II.  Among other things, he had  fallen on a grenade for his buddies. I was honored by the award and happy to endure the barbs from friends  throwing their textbooks down in the hall and yelling –“get it Sandy”.

Shortly thereafter, I graduated from White Station with fairly undistinguished marks (my rank was 125 out of a class of 545). But I was delighted when my classmates voted me “Best All Around” boy in the Senior class. I had scaled the social hierarchy of high school. That seemed important at the time. But I barely keep in touch with a only a few people from High School., through facebook

During the summers following eleventh and twelfth grades I had jobs at the RCA television factory in Bloomington. Those jobs convinced me I wanted to do something less tiring and more cerebral for a career so I resolved to do well in college.

At the factory I was a member of the IBEW Union, which got me overtime. I used to tell dad when he drove us home from work that  we unionists were about to go on strike but I couldn’t PROVIDE DEAILS about it as he was a management lackey. It was our little joke.

. Later –Dad hated work –I think some young upstarts were put above him. Also whenever I hear Jack Welch praised as a business leader worth emulating , I think of how he closed down domestic manufacture and assembly of televisions . My Dad hated “Neutron Jack” who got rich and famous by getting rid of people’s jobs by shipping them overseas.

 Selective Service Wants Me But Nixon Says “ No Thanks”

In 1972 I participated with others born in 1953 in the Selective Service Lottery. Despite the Paris peace talks, the Viet Nam War would go on three more years, and student deferments were no longer given. I received a low number –in the 30’s . I thought about claiming Conscientious Objector Status but that did not feel right. I received notice to take the physical in Indianapolis. I went. I   passed. It looked like I might be inducted. But Nixon was trying to wind things down and announced no one born in 1953 would be drafted. So I was able to go to college .

My active social life ended abruptly at graduation from high school.  I moved to Bloomington and started college among the 35.000 students there . I knew no one. And I was living at home. The piper was being paid. MY  ATTACHMENT TO HIGH SCHOOL  LED TO LONELINESS IN TRANSITIONING TO COLLEGE

 Indiana University

Although I was painfully lonely at first, I still liked college. I liked the  symbolic logic classes, intramural sports, the ability to “test out “ of  several courses and receive credit, the basketball games coached by Bob Knight in his early years –before he went totally nuts. I rode my bike the 5 miles to campus. That first semester coincided with the 1972 presidential election. Contrary to my parents, I was for McGovern. Though I had very little, I even gave his campaign some money. The result was to put me on liberal mailing lists for years.

I worked part time at Sears, in the lighting and housewares department. I received no relevant training and many customers asked questions about wiring. en I tired of saying “ Sorry, I don’t know,” I began to offer some off the cuff answers. I hope no one burned their house down by following my advice.

In-state tuition at Indiana was only $325 per semester. I talked my dad into letting me move into a dorm in the second semester. I began to meet people and feel more engaged. I enjoyed getting pizza with my roommate and liked walking THE BEAUTIFUL CAMPUS  to classes . I brought my laundry    home on weekends. I started to recognize that I  had academic inclinations and decided initially to try for a triple major (political science; Russian ; and philosophy). I ended up dropping the Russian major but graduating in only 3 years. I loved philosophy but saw that teaching jobs in that area would be scarce AND POORLY PAID

My political science major was easy. I got a bunch of credit for a thesis on the way the presidential nominating process was being changed by Democrats. This thesis took me to the Democrats’ midterm convention in Kansas City in 1974, where I saw politicians (including Bill Clinton and Mo Udall . a[J1]  I recall hanging around media types in abundance, including David Brody, whom I admired greatly.. A professor went with me. The university paid for the trip and eventually my thesis won a cash prize named after William Jennings Bryan for the best “honors” thesis.

 Summer Jobs

After my freshman year at IU I got a summer job in Washington D.C. Though I had no experience with computers, THE DEPT OF AGRICULTURE’S RURAL ELECTRIFICATION  ADMINISTRATION offered me a job as a COBOL programmer because I had done well on the civil service test. I think I was a GS-3.

I never really caught on to COBOL—with its if-then structures, go to  loops, and so forth but I got a little better over the summer. IT WAS THE ERA OF COMPUTER PUNCH CARDS AND AFTER SEVERAL ATTEMPTS I GOT SOME PROGRAMS TO WORK AND PRODUCE CORRECT OUTPUTS Mostly I just liked being in Washington that summer. The town and I were mesmerized by the Senate Watergate hearings.EACH DAY AFTER WORK I WOULD join various summer interns in the lounge of the GW dorm o watch the hearing.
Living on my own , I learned SOME hard lessons about personal budgeting—there were times near the end of a pay period when I lived on peanut butter and bread. I recall once my brother  Brad visited me overnight  in mY non-airconditioned dorm room that summer . He was so warm the first night he bought  me a fan.

The summer after my second year at IU I lived in Memphis and worked as Brad’s campaign manager for the State legislature. This requires a short detour into Brad’s life.

After a couple years at Memphis State Brad was elected President of the Student Body. In 1972 he decided to run for the Tennessee legislature representing the district that included the University. He ran a door to door campaign  as a Republican and eked out a victory over the incumbent Democrat. That was the year of  Nixon’s landslide over McGovern .

With his election  in 1972 the same week as his 21stst birthday, Brad was the youngest person ever elected in the state.

When he got to Nashville, he was an excellent legislator. But he  disliked the actions of a fellow incumbent Republican Tag Weldon, –who  represented the Memphis district our family had lived in. Brad determined to move into Tag’s  district and challenge Tag in the primary. It was incumbent versus incumbent. Tag termed Brad a “carpetbagger.”Brad hired me as his campaign manager  I involved many friends . It was very retail politics—yard signs; flyers; door to door campaigning; endorsements. We had Henry Loeb on our side, a big strapping and well known former Memphis mayor(he was mayor when M.L King Jr was killed]. Henry  often preceded Brad on his walks around the district.  The ladies answering their doors  would see the mayor and be flustered-. He would ask, “is your mother home?”  He flattered the ladies and introduced Brad to an invariably warm welcome.     We  won a huge victory over Weldon, nearly 70 % of the vote. Brad served a total of five terms before retiring from the legislature thing he did while in the legislature was help  a struggling Memphis company deal with some onerous state tax laws. That company was Federal Express., , which has been a boon to Memphis.

 Unexpectedly,on a Basketball Court, I take a Fall

On Saturday night January 17, 1975 my life changed. I was back on campus ready to begin classes for my final semester. My roommate and I saw two girls shooting baskets outside. We went to join them. The cute little brunette with the excellent set shot and I formed one team. We won. Her name was Diane. She was wearing a navy blue zip up sweatshirt. We later that night went to a movie, Serpico, playing on campus. We ran a foot race that night on the way back to the dorms. It was close but I won. I neglected to get her phone number.I mistakenly assumed because I knew what dorm she lived in –and it was just across the street from mine—that I would just see her. I did not.  INDIANA UNIVERSITY is a big place if you are looking for a cute brunette wearing a navy hoodie possessing a good set shot. After several inquiries over a couple days I got her number and called her.  She had assumed I was not going to call since it took me so long.

We went to a local Chinese restaurant and began to get to know each other. She says she loved how I poured her tea.

On Valentine’s Day I sent her a dozen pink roses. I remember walking around Bloomington looking for a good florist. She says to this day that when she got the roses she knew she would marry me.

Our dating grew more intense and, while I did not notice it at the time, tiring. The young think themselves indestructible. But I was not. I got mononucleosis and was hospitalized. Diane visited me but still made time to see a boy who was passing through town. A friend of mine spotted them and told me. I milked that for all its worth..

 Whither, After College?

Before settling on law school, I was picked by a group of iu Professors with either Rhodes Scholarships or some connection to  Oxford  university to represent IU in competition for that prestigious scholarship. One of the professors I had taken a seminar from first year–Breon MitchelL  served on the selection committee.I underwent  extensive interviews and dinner with the Rhodes  selection committee  in Chicago. I did not win. So it was off to Law school, not Oxford.

There are two aspects of the  Rhodes interview process I recall. First, I thought I had done well when asked  about my interest in Kierkegaard. Second, I recall discussing  a then-current but very politically incorrect book by George Gilder which suggested an evolutionary basis for women to be homemakers . I regretted getting into that.

I was accepted at the University of Chicago  Law school  with considerable financial aid . That was a convenient location as well as a good law school. Diane and I were serious. She decided not to go abroad to school as she had planned but instead  to finish her college by living at home in Munster, Indiana (a suburb of Chicago)  and attending a regional Indiana University campus in Gary.

I lived in the law school dorm the first year of law school. We saw each other most weekends, usually at her parents’ house. Diane’s mom would prepare a nice dinner on Sunday and her Dad would often drive me to the train or back into Chicago Sunday evening . I appreciated how they welcomed me.  I have tried to be as accepting of my daughters’ boyfriends and husbands

My  first week of law school was like something out of the movie, The Paper Chase. Even before school began, assignments had been posted on the Law School Bulletin board. The first day of Torts class we were expected to be ready to discuss 30 or 40 pages of the Casebook. Professor Epstein asked me to recite the facts of Vosburg v. Putney, which involved one boy kicking another in the shins. As I recall the kicked boy had unusually vulnerable shins.But the risk of a vulnerable shin should be borne by the kicker not the kickee. I knew all this as I tried to state the facts ,But I had the wrong kid doing the kicking. “Wrong !” screamed Epstein, and then he threw his chalk at me. I was stunned. The class laughed. I was not in Indiana any more .

After a bit, my confidence grew.   I was good at law school, the hypothetical fact situations and the mode of analysis. But I was not happy with the all-consuming nature of Law School. I lived, ate and showered with law students; some kids took law books into the shower. It was intense. I remember  a  friend Lauren Dessonville, put up a sign at exam time on his door paraphrasing Dr Johnson–“nothing so concentrates the mind as the realization that you are about to be hung in the morning .”

After a few months of Law School, I asked Diane to marry me  .  I spilled the beans as soon as I met her as she got off the train from Indiana. I could  not wait until the ring was in my hand. We then took the Illinois Central train  to the Loop where I had previously picked out a  diamond ring at a tony jewelry store, Carteaux, where they had to buzz you in.  I gave it to her while we were sitting on a bench in the train station in the Loop. Those benches are no longer there. Where are the historic preservation people when you really need them?

We got married in June 1976.  For that summer I had a good law firm job at Isham, Lincoln and Beale ( the Lincoln in this name referred to Robert Todd Lincoln, son of President Lincoln) for the summer because my first year grades had been As.

I was 22; she was 21; we had no money. I did well at Isham and was told that as long as they existed I would have a job waiting for me there. I appreciated the enthusiastic offer. Unfortunately, after more than a century of existence, it went out of business a few years later.

Our Wedding

We had a fairly large wedding at Diane’s church.  I had not slept the night before . I was supposed to share a bed with Brian at the Holiday Inn but I ended up on the floor wedged between bed and wall. The wedding itself was also uncomfortable. It was a very hot  June day. I sweated profusely.  Brad was my best man. Diane and I had memorized our vows; the music was good; I was soaking wet. I was  skinny and had a lot of hair. I must have been a sight. But all eyes were on Diane anyway, who looked beautiful.

The reception was in the church basement; then we took off for Bloomington—a four hour drive. We loved opening the cards and checks on the drive down. Our first married night was at the Ramada Inn in Bloomington and then we went to a resort on a nearby lake—Inn of the Four Winds. We pedaled paddleboats, ate good meals, drank whiskey sours and had a great time.

T
/h1> A couple tough years
The first few years of marriage were tough, particularly for Diane. She was working in dreary secretarial jobs in downtown Chicago while I excelled in law school, becoming law review, then articles editor, etc. She hated the apartment as it had many roaches; the Hyde Park neighborhood ( she was attacked once and the barking dogs in the first floor apartment scared off her assailant ); my law school friends who saw her as merely Jeff’s wife; her jobs; her often frigid commute, particularly when walking across the bridge over the Chicago River ; and when she came home to find me watching cartoons instead of studying,  me. Summers were better –I took summer jobs in D.C. at prestigious law firms, Covington & Burling and Shea & Gardner.When law school was over , we were much happier

A Great  Judicial Clerkship

I graduated at or near the  top of my class and obtained a coveted judicial clerkship with U.S. Circuit Judge Spottswood Robinson of the DC Circuit. Judge Robinson had been the brief writer/researcher for Thurgood Marshall in Brown vs Board of Education and numerous other seminal civil rights cases. He had earned the highest grades in the history of Howard Law school, and had been dean there , a member of the civil rights commission,and a District Court Judge appointed by President Kennedy. President Johnson nominated him to the D.C. Circuit.

Judge Robinson’s diligence in work, care in research and gentle courtesy were the greatest examples to me.  Every night as we left he would speak for a few minutes with the cleaning ladies. We might be working till 11 pm but the judge never rushed out—he always took time to talk to people as people. I hope it fair to call him my mentor  in law and life. He was a giant compared to many lawyers today who remember him, if at all, as the judge who wrote the most prolix opinions with numerous footnotes.

I learned the importance of research from the judge as  well. I learned that elegance in the written word is nice but winning cases requires  not elegant rhetoric but
comprehensive research of authorities and thinking clearly about the important precedents.  I considered it high praise when one client commented upon reading my brief—“You researched this back to Leviticus.”

In my  later law practice I found the Robinsonian emphasis on research remarkably valuable. In Lockheed vs Thomas I prepared a cert petition involving a question that the Supreme Court had previously declined to hear, notwithstanding a split in the circuits. But by research I found that proponents of a national court of appeals (which was anathema to most Supreme Court Justices) had cited that unresolved conflict as the kind of case for which a new court was needed. That got the Supreme Court’s attention. Certorari was granted and to my surprise we won the case 7-2.

The second example was even more dramatic. The law firm had represented the National Forests Products Assn in a case involving  the right of landowners to build access roads across Government land in Montana to remove timber from the privately owned land. (Much of the West exhibited this checkerboard pattern of public and private lands.)  By the time I was asked to work on the case there was a 3-0 Ninth Circuit Opinion against us on all points. I was given the usually hopeless task of seeking rehearing by the panel or the whole circuit court In Banc. The associates who had worked on the case before me were very good—Elizabeth Gibson—later a professor At UNC; and Bill Eskridge, later a professor at Yale. But research it  anew I did and I found something new  which undermined the Ninth Circuit’s conclusion that the right of access contained in the Alaska  National Lands Act was limited to Alaska lands. I discovered that subsequent to the passage of the Alaska Act Congress had also passed laws involving national forest lands in other states such as Colorado . The conference report on the Colorado act had eliminated the right of access in that statute because the conferees understood the prior Alaska act to grant the access on a national basis  . That included Montana. When this escavation of legislative history  was demonstrated to the court the court withdrew the prior opinion and issued a new one finding for us 3-0 on that basis.

One of my life’s disappointments was that I did not get to clerk on the Supreme Court. I was granted  an interview by Justice Rehnquest ; I spoke to the Chief Justice’s selection committee, and was a finalist for Justice Blackmun , who asked judge robinson to write him a recommendation, which the judge handwrote in his beautiful penmanship.
I had long coveted a supreme court clerkship.  Throughout law school when I was shooting baskets by myself .’. I would say to myself-‘-if I make this SHOT I will get the clerkship.’ THE ODD THING IS THAT I later learned that a competitor had obtained the Rehnquist clerkship by disclosing a similar FANTASY to the justice ,who THEN invited the application to visit the basketball court in the supreme court building.  Rehnquist watched as the applicant sunk a foul shot.
and then offered him the job. When I HEARD THIS STORY, I THOUGHT someone was stealing a slice of my life.THEN I settled INTO REGRET THAT I HAD NOT HAD THE COURAGE TO SUGGEST THIS TO REHNQUIST

I recall getting a new tie for the Rehnquist interview, but even that did not help. In that interview the Justice read to me from one of my law professor references, David Currie, who had said my record was virtually identical to Maureen Mahoney’s—an attractive classmate of mine. (Her name was recently mentioned in connection with a Supreme court vacancy.)   She got the clerkship. I convinced myself that I did not come off well in interview situations. After interviews I always thought of things I wish I had said and things I wish I had not said.that was one of the biggest disappointments of my professional life

Back home to Indiana and Becoming a Father

After my clerkship with Judge Robinson, Diane and I decided to see if living in Indiana suited us.  I think I was persuaded in  part because of the disappointment I felt over not getting a Supreme Court clerkship. I accepted a job with the biggest firm in the state –Barnes, Hickam, Pantzer & Boyd.  I passed the  Indiana bar without even taking the usual bar review course. But neither my work nor the town suited us so after several months I quietly arranged to return to the Washington firm of Shea & Gardner.

The most important event that occurred that year in Indiana was the birth of our first child—Sarah.

I thought we were ready but two weeks before she was due to give birth (her doctor had said she was due Race day—the day of the Indy 500)  , Diane and I woke up in the middle of the night. The bed was soaked. Her water had burst. She got in the shower. And I began making her jello—food she could eat while waiting for contractions. We then called the doctor, who said “ forget all  that nonsense, get to the hospital now.” We drove there, arriving early morning. After a day of pitocin – induced hard labor and an epidural for pain relief, Diane gave birth around 7 pm that evening.

I was in the delivery room but my view was a bit obscured when the real action started so I stood up. The doctor snapped at me to sit down. I did. I recall the pure joy of holding Sarah and seeing her held by Diane. The days my daughters were born rank as my favorite days of all time. Such joy ! We got a car seat and took her home in a few days.

Fatherhood –for me–marked the beginning of true adulthood.  There was now  a person utterly dependent on us whom we would do anything to protect. I worried a bit more than normal as crib death was much talked about then— I spent hours watching her sleep, placing my hand on her chest or back to feel her breathe. But there was nothing more important to do.

We soon learned the importance of formula, apple juice, Luvs or  Huggies( after a horrid experience with cloth diapers and a diaper service), wipes and other baby necessities. Sarah was a beautiful, happy, bright child, but in the first few weeks she was given to projectile vomiting.

Diane has not worked outside the home since Sarah was born and I am so grateful that she made that choice, even though we were moving back to Washington, a City that defines people by their jobs. We announced we were leaving  and left shortly after the Barnes people threw us a terrific baby shower. Diane was mortified. I thought it was just one of those things.

 A Thanksgiving without Turkey for Diane

Two and a half years later I was still at the Shea & Gardner law firm and we lived in a rented house in downtown Silver Spring, within walking distance to the Metro. Diane was expecting again and due anytime. On Thanksgiving at about 2 am Diane woke me . I shaved and drove her to the downtown George Washington Hospital where  she was to give birth. My mother was staying with us so she stayed home with Sarah. The hospital staff examined Diane and  sent us home but by the time we got home we turned around and drove back.

We did not know the baby’s sex  in advance but if it was a girl we had decided the name would be either Jennifer or Laura. If a boy we were inclined toward Peter. Sarah wanted a brother.

After the usual preliminaries Laura was born and cleaned up. As I held her I looked at her and said, “Hi Laura , I am your Dad and your mom and I love you so much.” The name was settled  the moment I looked at her. She just looked like a Laura.

We called home and told Sarah she had a sister. “No ,” Sarah insisted, “I have a baby brother.” She eventually came around.

Mom took care of Sarah and worried about Diane missing dinner. But turkey was the last thing on Diane’s mind. Our family was complete, Diane resolved in her heart. During the aftermath of the birth Diane had her tubes tied.  I made no objection .

 Fatherhood

Bertand Russell said, “The place of the father in the modern suburban family is a very small one, particularly if he plays golf.” Though wittily phrased, Lord Russell’s remark could not be more off base.

I knew—from the day they arrived—that nothing I did would matter if these girls did not grow up healthy , happy and confident. I knew that family vacations were important but that routine father/daughter trips to the zoo or to miniature golf (perhaps Russell was not referring to mini-golf) were even more so. After work, we would often go to a nearby park with swings where my specialty was the Super-Duper push where the girls would go so high I could run under them.

But these excursions were not made to fulfill parental duties—we just had fun together. Often I would take turns doing something with each daughter separately. I am  grateful that I became a father during a time when the culture recognized that the Victorian model of a distant father focused on reading  the newspaper or brooding about work was not the most natural or healthful sort of father.

My kids loved to come into my office –to write on note pads, talk on the phone or intercom and drink a soda. They would leave me pictures or notes I would find later. When asked what kind of work their daddy did, their answer was not “he is  a lawyer,” it was “he talks on the phone and drinks Cokes.”

As they grew, my job was to provide the support—financial and cheerleading—to pursue their dreams—instead of having my own agenda for their lives.

Cats and Dogs

From the beginning of our marriage pets were important. Preparing for our first married Christmas, we bought some ornaments at a Hyde Park drugstore and put up and decorated a tree. We were beginning our traditions. Prior to the purchase we had a conversation that has since been repeated about 30 times: short needle or long. Diane preferred short and her view has prevailed probably 28 out of 30 Christmases together.

A few days before Christmas we went to the Chicago poundand picked out a calico female kitten as my main Christmas present. We called her Chrissie.

A few days later I noticed with both anticipation and concern that I had a large growing number of presents under the tree. Should I get Diane more? On Christmas morning I found upon opening my gifts that I had received cat supplies—litter, food and water  bowls, litter box, and cat food.We laughed—my wife was  cute and sneaky.

Chrissie was a sweet cat and enjoyed the simple pleasures—rubbing up against a leg, or swatting and chasing an aluminum foil ball. In later years she loved sleeping with the kids. She lived about 15 years. When her kidneys failed and she could scarcely.

A few years walk, she used her last strength to climb our stairs to reach the girls’ bedrooms after Chrissie’s death we got a dog –part poodle, part cocker. We named her Jessie and she loved to run around our yard –barking and running off deer 10 times her size. She had black hair and a gentle nature  . When she came down with a fatal illness we were all heartsick and I cradled her in my arms at night. When she died at 3 am one morning, it was lying atop my chest in bed. After some preparation  I woke everyone in the family up and we  went down in our back woods , where we held a simple funeral service. Our pets teach us much about love.

Shea & Gardner

The bulk of my legal career was devoted to the private practice of law at an unusual firm called Shea & Gardner. It had been founded in 1946 by Frank Shea and Warner Gardner, both distinguished government lawyers in the FDR Administration. Frank had been Assistant Attorney General for the Claims Division and deputy prosecutor at Nuremberg (deputy to Justice Robert Jackson); Warner had been Solicitor of Labor and Deputy Solicitor General. Earlier in his career Warner had been law clerk to Chief Justice Harlan Fiske Stone and worked  awhile for the irascible Harold Ickes.

Frank and Warner shared a common passion for excellence in legal advocacy. They believed in hiring the  very brightest. I had heard about the firm while working the previous summer  at Covington & Burling , an excellent firm that was itself the subject of a mid -1970s book termed the Superlawyers. I asked people at Covington to recommend a smaller firm; Shea was the consensus choice. I chose to work there simply because I thought the per capita quality of legal brainpower there was unsurpassed anywhere . It was an unusual reason for picking a firm.

The personality of the place was that of an elite meritocracy. If an applicant put Phi Beta Kappa on his resume, Frank would ask—“was that junior or senior year?” Frank was the big business generator—Warner the scholar. The faculties of leading law schools  boast numerous Shea & Garner alumni.

my practice during the 1980s primarily consisted of two areas–,major litigation and the design and regulation of novel insurance products, such as flexible premium variable life insurance. Larry Latto was the senior partner in the sec/insurance area. He had been Shea AND Gardner’s firstt associate and much later the first–post-Frank Shea Chairman of the  firm. larry Asked me to get involved with his largest client, Prudential INSURANCE, as well as others. The area was  esoteric and complicated but after initial reluctance I found I enjoyed working with the actuaries and business executives. Larry Latto , one of our colleagues observed, would rather be admitted to the Society of Actuaries than given a seat on  the Supreme court. Larry’s enthusiasm was contagious. We worked well together for several years.

We sometimes butted heads with lawyers for other companies who were not as candid   about the implications of various rule proposals before the sec. On behalf of Prudential we submitted  lengthy comment on a proposed rule 6e-3(t)  supported by the ACLI–the life insurance business trade association and lobbyist. we submitted a comment showing that the premium an insurer could assume would be paid under a flexible premium product, and from which certain percentage loads could be taken , were considerably higher than the target premiums actually expected . This comment upset some of Prudential’s competitors but we were happy to be forthcoming.  We were even more pleased WHEN OUR PRODUCT WAS THE FIRST ONE OF ITS GENRE CLEARED BY THE STAFF OF THE SEC.
I had the privilege of sitting at counsel table in the Supreme Court for Warner’s last argument there.  I had done most of the work on the briefs. Warner was brought in for argument and in time to comment on our reply brief. Warner commented that my mind was so sharp it sliced  clouds. I think that meant I was drawing distinctions where there were no valid grounds for them. But we won the case and a most remarkable thing happened in oral argument. Warner was allowed to go on talking for  a  couple minutes after the red light went on. It was a measure of respect for him that the Chief Justice would not cut him off.  No one in the courtroom that day  had ever seen the Chief , WARREN BURGER , so lenient.

Frank’s mode of preparing for an oral argument was both quite civilized and quite brutal. He would have the team over for a superb dinner—wine from his first-rate cellar would  freely  flow. After dinner Frank would turn to one of two of his  more junior colleagues and say, “How would you argue this case?”—whereupon the attorney would be expected to give not merely a coherent but polished argument, which would then be critiqued by the group.  On one occasion Frank got tired after dinner, put on his pajamas, and held his court in his bedroom. As someone was arguing a case Frank called out to his housekeeper for more rabbit pate. Told there was no more , Frank fumed, “What? No more rabbit pate?” I liked to tell this story to my protégés at Shea & Gardner so they would see the comedy that exists in even the most serious , pressurized situations. This scene was worthy of Monty Python.

I became a partner in April 1985 , after about five years at the firm. When I was a young partner I was appointed to the firm’s governing body—the executive committee. Besides representing the young partners , I had two duties there: Taking the minutes , and helping Frank Shea get his galoshes off before the meetings. I had a number of great experiences at the law firm –Supreme court cases; large SEC clients; lead attorney in multi-billion dollar bank failure cases. I came away with several conclusions about private law  practice.  Shea & Gardner was as “old school’ as any  law firm but to earn respect in law firms today you must get and hold clients. It is how law firms keep score. I proved quite able or lucky in that regard. Second, be prepared to do anything. I never expected to do SEC or insurance regulatory work but I ended up with millions of dollars of legal business in this area. Third, take opportunities for government service. The firm will want you back. Finally, be generous with your colleagues, in terms of credit, client contact and pay.

My partners at Shea & Gardner were very talented. Steve Hadley, one of the nicest and ablest lawyers in the firm worked on some matters with  me and served on the executive committee with me. I mention him because he BECAME PRESIDENT  George w BUSH’S NATIONAL SECURITY ADVISER.. Another partner had served as CIA director in the Clinton administration,, Jim Woolsey . All in all, it was a great firm and I am saddened to report it was merged into the Boston firm of Goodwin & Procter in 2004.

I will give just one example of the kind of interesting and unexpected cases I handled at Shea & Gardner. First Republic Bank  Texas was the most expensive bank failure in US history. I was lead litigation attorney for all three creditors’ committees against the FDIC. The amount at issue was $ 2 billion –we claimed the FDIC owed us  a billion; they claimed we owed them a billion. There were four major law firms and the Wall Street Journal watching every step I took in the courtroom. How did I get this case ? How was it resolved?

The case came to me because of a previous unsuccessful presentation I had made for business from American General corporation, a major bondholder of FirstRepublic. In this prior matter the company was seeking counsel to prepare a certorari petition in a case involving the applicability of securities laws to an excess interest annuity contract. I made the pitch and was told I impressed the general counsel. Among the cases I spoke about was a successful challenge a colleague and  I had made to the banking regulators’ brokered deposit regulations. We did not get the annuity  case but more than a year later  I got a call   from American general asking me come to Houston to review how the FDIC was tying up the value of the FirstRepublic banks and harming the bondholders. I went down and said I thought we should not seek an injunction, because we lacked irreparable harm. The banks came tumbling down by the FDIC’s exercise of guarantees given by the holding company and  ALL THE other  AFFILIATED  banks of a $ 1 billion loan made to the lead First Republic banks (Dallas and Houston) by the FDIC. As mentioned earlier, in terms of bank asset size and cost to the government, it was AT THE TIMEthe largest bank failure in U.S. history.

We persuaded the creditors’ committees to retain us. Then we developed the theory that the  holding company guarantee was unenforceable  because it was a fraudulent conveyance. We also argued that the FDIC had shut down good banks to offset its own costs from other banks.  The bankruptcy court agreed with many of my arguments after  an all-day presentation I made. We then settled the 2 billion dollar case by transferring the value of a Delaware credit card bank owned by the debtor to the creditors and both sides agreed  to withdraw their billion dollar claims. We garnered about 220 million from the sale of the credit card bank to Citicorp — thus, senior bondholders received all their money back; the vulture funds who bought the senior or junior bonds in distress made huge killings.

The Education Department

As First Republic was concluding I was asked to get involved in another big bank failure- Bank of New England . The thought of another all consuming bank failure case was not welcome from my personal  perspective. I contacted Lamar Alexander, former governor of Tennessee, about whether he might be interested in my helping him should he be confirmed as Education Secretary. I had met Lamar when Brad was in the Legislature. Lamar was interested ; he got confirmed and then I was nominated by the president –Bush 41—to be general counsel of the Education Department.

The confirmation process was interesting. Sen. Strom Thurmond came off the  Senate floor to meet me, look me in the eye, and ask me about my family. He then said “ you seem like a fine young man. I believe I’ll vote for you.’ Sen. Paul Simon was worried that I was too conservative on civil rights issues –he had heard about work I had done on accrediting agencies as an adviser  to the Secretary.   SO I went to see SENATOR SIMON. I told him about my considerable pro bono civil rights practice, including the pro bono representation involving promotions I had provided to the black police officers in Jackson , Mississippi at the request of the Lawyers Committee for Civil Rights. He was then supportive. I was confirmed unanimously.

I had about 100 lawyers working for me and I had the confidence of Secretary Alexander. The issues were fascinating—including, school choice, race-based scholarships and admissions , gender equality in intercollegiate sports, national standards, testing and accreditation. I think we did very good work  but the President’s lack of a real domestic agenda and his breaking of the “read my lips—no new taxes” pledge paved the way for the election of Bill Clinton.

The team Lamar put together at Education was first rate –including David Kearns –who had been chairman of Xerox—and Diane Ravitch, the education scholar. I learned a lot at Education, from both the political people and the career lawyers.

I will mention a couple of the issues I dealt with at Education. One was political correctness imposed by accrediting agencies though a diversity requirement. The Secretary had to accredit the accreditors as “reliable authorities” in order for the schools they accredit to   participate in federal student aid programs. Middle States was requiring Westminster Theological Seminary to put a woman on its board and Baruch College,  a college with 18% minority faculty , to increase that percentage. To make  a long story short ,  Secretary Alexander thought those decisions threatened academic freedom  and diversity among institutions and so we withheld designation of Middle States as reliable until they dropped its diversity requirement.

Second, I enjoyed my role in developing and supporting the GI bill for kids,  under which poor families could take $1000 dollars of federal money to the public or private school of their choosing . This would inject needed competition into the system. I wish the present administration and Congress would do more in the area of school choice. The constitutionality of such laws is even clearer than it was in 1992. The crisis  in public elementary and secondary education is even graver.

Reprise at Shea & Gardner

In January of 1993 I was back at the firm. The bank failure cases were largely over. So I set about finding other business. For the next 4 -5 years I was very involved in projects to correct faulty or inadequate legacy computer systems that may have adversely affected policyholders, shareholders or other customers. Though the details varied, the projects all followed a common path. We found the problem; instituted improved processes to avoid a recurrence ; and made full restitution. My job was to design the project and then sell it to the regulators, state or federal. No regulator ever sanctioned one of my clients in these projects. No class action attorney ever brought a case. And we stayed out of the newspapers. These were all very useful cleanup projects—from  both the clients and the regulators’ perspectives. Corporate compliance—particularly remediation of computer errors—had become my new specialty.

MY DAD

My father and I had a good but complicated relationship. He had learned electronics and earned an associate’s degree at a small school in Columbus. I do not know if he liked the subject or if he chose it because it was the Information Technology of his day, with good jobs available. I doubt he even made that distinction , because he was a practical man. Growing up, we felt and hence we were decidedly middle class. I liked our house better than those of most our neighbors.

Dad and I butted heads at times, probably more than younger brother Brian, who was on the shy side, and Brad, who seemed more independent of, than  confrontational with , Dad. Of the three boys i looked the most like him, and as I grow older, the resemblance increases. That is why, I suppose, his twin sister Bobbie tells me I am the most handsome of the three.

Dad was devoted to family. He earned the money we needed, so Mom could focus on us. For a time he had to commute from  south central Ohio to Illinois for employment.

When I think about fighting with dad, I can scarcely remember why–with three exceptions—my desire to stay in Memphis to finish high school; Brian’s desire to go to Hanover, and my applying to all 12   of the best law schools in the country. But I cannot say Dad was inflexible–I won  all three of those issues. And I remember the poster he made for me with all the law schools listed and how much it cost to apply.

I admire how hard Dad worked in his 50s and 60s to keep in shape. I wish I was more like him in that respect.

Dad–like us all–was a product of his dna, his upbringing, his experiences and his choices. I don’t exactly  know how he and Mom did it, but I think –at the risk of immodesty–that the results speak for themselves.

i am pretty sure Dad wished he had had a daughter–for a while we all were counting on little Bri and his ironing table  to fill that role.

Dad was an excellent POP  POP and Pap-Paw . He enjoyed sitting for Sarah and Laura while they played beauty parlor. And Dad’s dancing with his girls on new years’eve is a treasured memory.

Dad was a devout Christian, and our faith says we will meet  again in the sweet by and by. I think when we get there he will have the  1956 Olds, or the  65 Ford country squire station wagon with fake wood on the sides, and will take us on a thorough tour of heaven.

jeff

E

In My weakness His strength is made perfect

many years ago  i wrote this hymn when my daughter sarah was writing one for her class in college

  I found comfort in writing a hymn about my disease. The Bible is full of counterintuitive insights like the one from Second Corinthians quoted in this song.

Here are the lyrics:

“On my strength I have often relied;

On my deeds I have founded my pride.     

But as hands shake, and mind begins  to cloud,          

My soul turns to God and I find:     

CHorus:

 

In my weakness your strength is made perfect; though I’m weak God’s great power can flow through;

Power, glory and grace, are mine in His embrace , so I’ll live in God’s power evermore.

 

Paul did plead to be spared of his thorn;

Jesus asked if his cross must be borne.

But as God said , to Paul and even His Son,

My grace is sufficient for Thee.

In my weakness your strength is made perfect; though I’m weak God’s great power can flow through;

Power, glory and grace, are mine in His embrace , so I’ll live in God’s power evermore”

amen

One of the most moving experiences of my life was hearing my daughter Sarah sing that as a solo in church.

 

My faith in God in  no way undermines my confidence in science as a method for learning about this world. As Kierkegaard observed, only pagans believe God can be directly observed in the universe. But I believe our “immortal longings ,” our  hard-wired sense of morality,  the trustworthiness of Christ’s teachings, and the peace that comes from trusting God,  all evidence the existence of deeper realities.

I also believe that a human being is not just his brain–you can control your brain your will to some extent. but there is a definite limit.For a year or so I went o see a  bio-feedback therapist to work on controlling my brain waves.  I proved quite adept at driving a car down a  curvy road using only my mind. it is also useful in calming one’s spirit before sleep. 

history of parkinson’s

I had thought Parkinson’s disease might be a creation of the industrial revolution , as the condition  was first  described  in western medicine by  James Parkinson  in 1817’ monograph entitled “A Shaking Palsy. In fact over 5000 years ago Indian  physicians practicing the medical system known as ayurveda , called the condition Kampa Vata. Kampa means tremor; Vata meand lack of muscular movement.  AND they treated it WITH  a tropical legume whose seeds have a high concentration of l-opa. Today, l-doa is still the besr treatment..

my brain surgery

My Brain Surgery
In early December of 2004 I contacted the Medical director of Medtronics, which makes the deep brain stimulators, and asked him where I should go for evaluation of this treatment. He said Dr Rezai at the Cleveland Clinic. I met Dr Rezai in Bethesda for dinner a few weeks later and liked his age—just 39; experience –considerable; his optimism –infectious; and his reputation for carefulness. I also knew his colleague Dr Vitek and asked for him to be involved as well. He was.
I went in the hospital the night before surgery. For about an hour I played cards with my family in the waiting area . I then tried to get some sleep but got very little.
The next morning a young colleague of Dr Rezai from Brazil named Andre bolted my head to the metal helmet that would keep my brain from moving during surgery. He also quizzed me on the surgery I was about to undergo and I impressed him with the sophistication of my answer. Screwing the helmet into my forehead hurt a bit.
I then had to wait in a holding area for what seemed like hours before being rolled into surgery. Using an MRI taken the day before, Dr Rezai had found that the structure of my brain was quite unusual and so it was more difficult than usual to plot a path to the target – an olive- sized part of the brain deep in the midbrain called the subthalamic nuclei.
The surgery began. I felt nothing . Yet wires were being pushed through my brain. I listened intently. There were times when Dr Rezai would ask for confirmation of a reading.
At times I was asked to talk or to count the doctor’s fingers. Then, at critical moments, we would hear a crack that indicated a good location for the probe. The abnormal electrical activity was a signal that we hit the right place. It was supposed to lead to relaxation of my stiffness. I received good results.

At one point in the operation I indicated that my neck was getting tired, and could they please hurry it up! Dr. Vitek said that I could limit the surgery to just one side of my brain at this time, but Dr. Rezai counseled against that, saying, C’mon, Jeff- we’re rounding third and heading home. Dr Rezai’s principal nurse , asked me if I had a message for my family. “tell them I am doing the best I can.” Diane later said she knew that meant it was hard and she doubted I would get both sides done at once. After another hour of surgery I asked Rezai where we were. He again said, rounding third and heading home. Dr Rezai’s charm was wearing a bit thin but I resolved to stick with it.
Late in the surgery, my blood pressure began to rise. This indicated a potential problem that could exacerbate any bleeding in the brain. The anesthesiologist pumped some medication into my blood and they also put on the CDs that my daughter Sarah had made me for the operating room. I began to sing along to relax myself. That shocked Dr. Rezai- he was not used to patients singing during brain surgery! After he calmed down, he then finished the operation. Dr Rezai liked the CD containing Beethoven’s Pathetique. He went to see my family and indicated he believed it would be successful but I did have a very difficult brain because my blood vessels were unusually long and lateral.
That surgery lasted nearly ten hours. I was tired. After surgery I was wheeled to a recovery room. I insisted on walking, wanted the catheter removed, and was the only one strolling about there . I stayed in the hospital that night, and was supposed to stay at least one more. But I was tired of the hospital and escaped to the hotel where my family was staying. I just got on the elevator with bandaged head and followed the signs through the hospital to the hotel, which was connected via skyway. I knocked on their door.. surprising them. Unfortunately, my wife decided to immediately walk me back and turn me in. She thought I was not altogether coherent. The nurses on the floor then watched me whenever I got out of bed. Service was improved , however. After surgery I had a surprise visitor-Mort Kondracke had flown up to see me/ ill never forget that. my brother Brian also joined my immediate family in the Waiting room.
About ten days later, I had a second surgery to place pacemakers in my chest to operate the brain probes. That was under general anesthesia, so I remember nothing other than the mild soreness that occurred after the operation. Dr Rezai did tell me that my head and neck were so tight that he had great trouble pushing my wires through. He said again I was a tough, quite unique case. I had worn him out. I was glad to have gone to the best.
I felt pretty fit after surgery and so I took my wife to a cleveland cavalier game–when LeBron James was still there
Following this second surgery to install power sources in my upper chest, and a difficult month of waiting for the brain swelling to go down so the stimulator could be turned on, programming of my stimulator began.
I was unprepared for this—it required going off medication; relaxing to see what settings helped; and it was very tiring. Three times I went to one programmer; I found the surgery to be helpful but not to the extent I had hoped. The programmer then suggested I was optimized and I should get someone nearer to home to check my device every few months. I decided instead to continue coming to Cleveland but to change programmers and seek to explore other settings. Some settings were unbearable; once I called Dr Vitek back into his office at 10 pm at night to turn my device down because my flailing was uncontrollable.
It took a year until the adjustment was maximized. My persistence was rewarded. Now I am more functional and expressive, sleep better, and have significantly reduced my medication. I am clearly better than I have been in a few years. The surgery is a great benefit. There are times I still get tight every day but I am much improved. about two years ago I decided to change doctors and get one expert at programming who lived in our area. that is how I came to Dr Amjad, about whom i will write a separate post

Indira Gandhi astutely pointed out,”there are two types of people in the world:those who do the work and those who take the credit.Try to be in the first group . There is less competiti

This blog post is an effort to describe my journey as a disease advocate.

. You may ask—‘what is a disease advocate?” It is someone seeking public policies that would benefit people stricken by a particular disease. In my case t

Lisease is Parkinson’s.

We people with Parkinson’s disease have a deficiency of motor neurons and a surfeit of organizations purporting to represent our interests in the corridors of Government and in the public square.Over the past quarter century Parkinson Disease (“PD’) has had several voices and inconsistency has been a problem; personal elbowing has been even worse.  One might think the common cause of solving Parkinson’s would trump  differences among organizations.  That has not been the case. Indeed, it was  one of the most political and often dysfunctional environments I have ever encountered.Since my departure from active participation in that environment in 2005, there appears to be better cooperation.,however.
Competition Among PD organizations
Michael  J. Fox’s book , Lucky Man, explains how destructive such competition can

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Sweet Angel

To be sung in the manner of Sarah McLachlan, to the music of Angel.

Lyrics by jeff martin

.

Spent all MY time waiting for that special gift
For that sweet baby to be okay
There’s always some reason, for a new mom to be scared
And it’s hard at the end of the day
Need some distraction, a rom com would do
And scallops by THE man whom i love
yes I have everything I’LL find some peace tonight
In my arms rests my angel, And we re HAPPY here
IN THIS BEAUTIFUL NURSERY, THE LORD SEEMS QUITE NEAR
you came down from the Lord in your silent reverie.
With my arms wound about you
May you find your true home here
we both love sleeping/so that‘s often what we do-
EVEN IF we see troubles outside
the storm keeps on twisting
but daddy will keep us safe-he’ll make up for toughness we lack
don’t make no difference -what’s blowing outside
it’s EASY to believe
In this sweet gladness oh-this glorious gladness
That brings me to my knees
You’re in my arms sweet angel stay here with me we all love our little family ;the endless peace we feel
you’ve come down from the Lord in your silent reverie you’re in my arms sweet angel. may you find your true home here
your’e in my arms ,my sweet angel may you find your true home right here